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New User
Posts: 2
| My 8 month old grand daughter "Peanut" has been diagnosed with Congenital scoliosis, Hemivertebrae and Thoracic insufficiency syndrome. We are looking for a specialist in TIS, however we live in Illinois and Peanut is on a medical card that will not let us travel to Philly to see Dr. Campbell. Can anyone help us or give us some advice on how/where to get her treatment? |
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Member
Posts: 8
| Motts in Ann Arbor is fantastic with the VEPTR!! That is where my daughter is treated and I went to 3 other hospitals including Boston who is ranked #1 and they are the ones who referred me there. It was the best decision we made for her to be treated there. I don't know where you live in IL but if it near the Chicago area it is not that bad of a drive. It never hurts to call There social work dept and see if they take it or what other options you have. Hope this helps |
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Member
Posts: 33
| Have you tried to contact the Shriners hospital in Chicago? They do the veptr surgery there. The treatment at Shriners is free |
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Trying to find a good Doctor to do VEPTR surgery
