VEPTR for Jeunes Syndrme

ans0014	Posted 2013-09-06 1:08 PM (#42056) Subject: VEPTR for Jeunes Syndrme
New User Posts: 1	Hi my son had his first VEPTR placed 12/28 and second placed 4/19 and first expansion 8/26. He now has left bronchus compression. Have any others had this issue and if so, how did you overcome it?
Arlene "Zoe's mom"	Posted 2013-09-07 9:58 PM (#42068 - in reply to #42056) Subject: Re: VEPTR for Jeunes Syndrme
Veteran Posts: 152	Hi there, I will have one of our jeune's mom's get on here as soon as she can. Most of us use the facebook group: https://www.facebook.com/groups/56052176312/ VEPTR Kids.
sawyer's mom	Posted 2013-09-07 10:07 PM (#42069 - in reply to #42056) Subject: RE: VEPTR for Jeunes Syndrme
Extreme Veteran Posts: 320 Location: Denver	my question is... is your child asymmetrical after the surgery? my son had compression which resolved when his other side was fixed and he was more even. you can pm me or call720-971-0921 melissa